Debating Return of Incidental Findings and Research Results in Genomic Biobank Research — Law, Ethics, and Oversight

mjlst_winter_2012

Published In

Minnesota Journal of Law, Science & Technology

Issue

Spring, 2012

Issue Number

2

Volume

13

Symposium Articles

The Role of Law in the Debate over Return of Research Results and Incidental Findings: The Challenge of Developing Law for Translational Science

Returning Individual Research Results: What Role Should People’s Preferences Play?

Deidentification and Reidentification in Returning Individual Findings from Biobank and Secondary Research: Regulatory Challenges and Models for Management

Incidental Findings in Genetic Research: A Vexing Challenge for Community Consent

Returning Genetic Research Results: Considerations for Existing No-Return and Future Biobanks

Enforcing the Rights of Human Sources to Informed Consent and Disclosures of Incidental Findings from Biobanks and Researchers: State Mechanisms in Light of Broad Regulatory Failure

Perspective on Biorepository Return of Results and Incidental Findings

The Informed Cohort Oversight Board: From Values to Architecture

The Tension Between Policy and Practice in Returning Research Results and Incidental Findings in Genomic Biobank Research